It's been a very long and tiring few months and I know that we are ALL happy to finally have some answers.
Dad's congestive heart failure will never get better. It will only get worse. I found out yesterday morning that he now has a bad aortic heart valve. Because of this, the heart will have to work more which is not a good thing for an 89 year old man. Cardiology said he is NOT a surgical candidate because of his bad health. So it is something Dad will have to live with. And we are praying that his heart can handle the additional stress and pressure.
They are controlling his newly diagnosed Complex Partial Seizures with medication. They have him on a very high dosage at the moment to shock the system. Then they will slowly taper it down to see if they can keep him fairly seizure free. He is still having seizures but nothing like it has been!
When we first noticed something was wrong with Dad at the beginning of January (2014) we thought he was just falling asleep all of the time which is what I blogged about. Then right after that, things started to get much worse (which I did not blog too much about.) When I said I really had to watch him 24/7 I wasn't kidding one bit.
This is the information from the Epilepsy Foundation describing Complex Partial Seizures (and Grandpa Bob is a "text book case":
First Aid for Complex Partial Seizures
- Do not restrain the person.
- Remove dangerous objects from the person's path.
- Calmly direct the person to sit down and guide him or her from dangerous situations. Use force only in an emergency to protect the person from immediate harm, such as walking in front of an oncoming car.
- Observe, but do not approach, a person who appears angry or combative.
- Remain with the person until he or she is fully alert.
"During a complex partial seizure, a person cannot interact normally with other people."Complex partial seizures affect a larger area of the brain than simple partial seizures and they affect consciousness.
During a complex partial seizure, a person cannot interact normally with other people, is not in control of his or her movements, speech or actions; doesn't know what he or she is doing; and cannot remember afterwards what happened during the seizure.
Although someone may appear to be conscious because he or she remains standing with their eyes open and moving about, it will be an altered consciousness—a dreamlike, almost trance like state.
Often accompanied by movements called automatisms. These may include chewing movements of the mouth, picking at clothes or fumbling.
A person may even be able to speak, but the words are unlikely to make sense and he or she will not be able to respond to others in an appropriate way.
Although complex partial seizures can affect any area of the brain, they often take place in one of the brain's two temporal lobes. Because of this, the condition is sometimes called "temporal lobe epilepsy."
Typically, a complex partial seizure starts with a blank stare and loss of contact with surroundings. This is often followed by chewing movements with the mouth, picking at or fumbling with clothing, mumbling and performing simple, unorganized movements over and over again.
Sometimes people wander around during complex partial seizures. For example, a person might leave a room, go downstairs and out into the street, completely unaware of what he or she was doing.
In rare cases, a person might try to undress during a seizure, or become very agitated, screaming, running or making flailing movements with his arms or bicycling movements with his legs.
Other complex partial seizures may cause a person to run in apparent fear, or cry out, or repeat the same phrase over and over again.
Actions and movements are typically unorganized, confused and unfocused during a complex partial seizure. However, if a complex partial seizure suddenly begins while someone is in the middle of a repetitive action—like dealing cards or stirring a cup of coffee—he or she may stare for a moment then continue with the action during the seizure, but in a mechanical, unorganized kind of way.
Safety IssuesPartial seizures take many forms and medical treatment does not always control them. People who live with frequent complex partial seizures may face many challenges. One involves personal safety.
Things like fire, heat, water, heights, certain machinery and sharp objects are all potential hazards when people are unaware of what they're doing and don't feel pain.
However, there may be ways to reduce obvious risks. For example:
- Using a microwave oven for cooking instead of a gas or electric range;
- Taking plates to the oven or stove to serve oneself to avoid having to carry pans of hot food or liquid;
- Using a regular knife for carving, not an electric knife or, if possible, leaving the carving to someone else;
- Keeping electric mixers and other electric appliances far away from the sink or source of water;
- Setting the water heater low enough to prevent scalding during a seizure and taking sit down showers if drop attacks are frequent;
- Making sure open fires have guards and that electric or other space heaters can't be tipped over;
- Not smoking and not carrying lighted candles or hot ashes from the fireplace through the house;
- Limiting ironing as much as possible;
- Padding sharp corners and carpeting floors.
Although some risks can be limited, others are accepted with partial seizures as part of living a normal life.
Public UnderstandingEvery day, people living with this type of epilepsy go to work, take care of their children, take part in sports, ride buses, cross busy streets, go on escalators, wait for trains and—perhaps most difficult of all—risk having a seizure in front of a public that too often does not understand.
Dealing with the reactions of others may be the biggest challenge of all for people with complex partial seizures. That's because many people find it hard to believe or accept that behavior which looks deliberate may not be.
Lack of public understanding has led to people with complex partial seizures to be unfairly arrested as drunk or disorderly, accused by others of unlawful activity, indecent exposure or drug abuse—all because of actions produced by seizures.
Such actions may even be misdiagnosed as symptoms of mental illness, leading to inappropriate treatment and, in some cases, commitment to an institution.
The Epilepsy Foundation and its network of affiliates are committed to making the public more aware of this type of epilepsy so that painful misunderstandings can be avoided.
Not uncommonly, simple partial or complex partial may spread to involve the entire brain will result in a later phase with generalized convulsions this kind of seizure is called partial with secondary generalization.
All my life, I have been used to dealing with someone who has seizures. My Aunt Marcia (Dad's sister who passed 2 years ago) was born with Epilepsy (Grand Mal with Convulsions.) But these Complex Partial Seizures are totally different from what she had.
The Neurologist said that because Dad played football in high school, college and in the Navy, and because he has recently been falling quite a bit and hitting his head, that is the cause for his brain injury (which causes the seizures.)
Dad will be going to a Rehab Facility once he leaves the hospital. We don't know how long he will be there. We found a beautiful place and it is like a 5 start hotel! I'd like to go there for a few weeks myself, it's that beautiful!! Once he is settled in, we can bring Lily and Muffin to visit.
Thank you all so very much for all your prayers and good wishes for us all. Dad has really enjoyed all your comments. Agnes & Shelle, you ROCK! Thanks for keeping our furends updated.
We all love Grandpa Bob and are doing what ever it takes so that he can live the remainder of his life as happy as possible.
Blogger is still being a real Bugger! I took some nice pictures of the Rehab Facility from our tour but Blogger still don't want to share them with you. It took me over an hour to get that one picture posted!